Navigating Dementia: Practical Resources and Action Steps for UK Families

Dementia is a life-changing diagnosis—not just for the person affected, but for their entire circle of loved ones. The journey can feel overwhelming, especially when you’re unsure where to turn for support. This guide offers not just information, but practical, step-by-step advice and resources tailored for families in the UK.

Understanding Dementia: First Steps

Dementia is an umbrella term for conditions affecting memory, thinking, and social abilities—most commonly Alzheimer’s disease and vascular dementia. Early recognition is crucial. If you notice signs such as:

Persistent memory loss

Difficulty communicating or finding words

Mood swings or personality changes

Disorientation about time or place

Your GP is often the first point of contact if you’re concerned about memory loss or changes in behaviour. They can assess symptoms, provide guidance, and refer you to specialist services for further support. Don’t hesitate to reach out to your GP early if you have any concerns.

Building Your Support Network

1. Join a Support Group

You don’t have to do this alone. Support groups offer emotional support, practical tips, and a sense of community.

Action Steps:

Local Groups:

Contact your local council’s adult social care team for dementia-friendly support groups.

Reach out to Alzheimer’s Society (England, Wales, NI) or Alzheimer Scotland for local listings.

Online Groups:

Join UK-based Facebook groups (e.g., “Dementia Support UK”).

Try Dementia Talking Point (Alzheimer’s Society’s online forum).

Helplines for Immediate Support

Sometimes, you need to speak to someone directly for advice or reassurance. These helplines are invaluable:

Age UK Advice Line

0800 678 1602 (Free, open 8am–7pm, every day of the year)

Friendly, practical advice on dementia and ageing-related issues.

Alzheimer Scotland 24 Hour Helpline

0808 808 3000 (Free, available 24/7)

Outstanding support for anyone affected by dementia in Scotland—carers, families, and those living with dementia.

Alzheimer’s Society Dementia Connect Support Line

0333 150 3456 (England, Wales, Northern Ireland; open 9am–8pm weekdays, 10am–6pm weekends)

Advice and support for anyone affected by dementia across England, Wales, and Northern Ireland.

Educate Yourself: Reliable, UK-Focused Resources

1. Books

“Contented Dementia” by Oliver James (UK perspective)

“The 36-Hour Day” by Nancy L. Mace & Peter V. Rabins

2. Online Training

Alzheimer’s Society: Free e-learning for carers

Open University: “Caring for Adults” (free course)

FutureLearn: “Dementia Care: Staying Connected and Living Well” (UK-based)

3. In-Person Training for Carers

Alzheimer Scotland offers excellent face-to-face training sessions specifically for carers. These sessions provide practical skills, emotional support, and the chance to connect with others in similar situations. Check their website or helpline for details about upcoming sessions near you.

Action Step:

If you’re feeling stretched, remember that even taking a few minutes to read a helpful article, listen to a short podcast, or chat with another carer can make a real difference. There’s no pressure to complete a full course or book—small steps, taken when you can, are valuable. Be kind to yourself and use whatever resources fit into your day.

Professional Help: Who Can Support You

1. GP and NHS Memory Services

Ask your GP about a referral to your local NHS memory clinic for assessment, diagnosis, and care planning.

2. Admiral Nurses (specialist dementia nurses)

Provided by Dementia UK.

Contact Dementia UK’s Helpline or use their search tool to find local Admiral Nurse services.

3. Social Services

Ask your GP or local council for a “Care Needs Assessment” to access support at home, respite care, or day services.

Self-Care for Caregivers: Don’t Neglect Yourself

Schedule regular breaks:

Use respite care or ask friends/family for help.

Look after your health:

Eat well, exercise, and keep up with your own medical appointments.

Seek emotional support:

Consider talking therapies (ask your GP for NHS counselling options).

Join a carer support group (Carers UK, local charities).

Community Resources & Activities

Dementia Cafés: Social meetups run by Alzheimer’s Society and local charities.

Day Centres: Many councils and charities offer dementia-friendly day activities.

Libraries: Many run memory cafés and offer dementia-friendly books.

Action Step:

Ask your local library or council about dementia-friendly events and services in your area.

How to Find the Right Resources

Start local: Contact your GP, council, or local charity for a directory of services.

Ask for recommendations: Other carers are a great source of trusted info—don’t hesitate to ask in support groups.

Stay informed: Sign up for newsletters from Alzheimer’s Society, Dementia UK, Age UK, and Alzheimer Scotland for updates and new resources.

Further Support and Information

For more practical advice, information, and links to helpful resources, visit kirstylgibbons.co.uk.

You’re Not Alone

Dementia care is demanding and often isolating, but support is out there. Reach out when you need help, take things one step at a time, and remember that every small effort you make matters. You’re doing your best in a very tough situation—please know you’re not alone.